你家有过动儿吗？

他没有办法静静坐下，
他就是会不断地走动，跑，爬高爬低，不断地说话。
他没有耐心等待，
还没轮到他他就已经抢先做，
还没问完问题他已经回答，
他会很常打扰或闯进别人正在进行的活动。
他很粗心，
他记忆不好，
常弄不见东西，
没有专注力，
跟他说话是他好像没有张开耳朵，
他没有办法完成指令，
他讨厌，不想做需要用很多精神的事情，所以他不做功课。
他很容易被周围的琐碎小事吸引。

他有
用不完
永远不会完
没完没了
的精力！
但这些精力都用在不恰当的地方，而且他在学校的学习能力也因此严重地受影响。
除了改变环境和态度，
他需要药物的协助。

酷！

搞笑得有意思

典型的asperger

A Helpful Website for Paeds

I came across this website when I was google-ing for some pictures of dysmorphic features.
The photo gallery is quite helpful, especially for describing findings for newborn exams.

Disability at a glance

Sitting in the clinic for a day, I came to a conclusion.

First class disability:
physical disability or severe mental retardation (eg blindness, congenital diseases that cause physical disability and mental retardation)
You earn sympathy. Your parents earn respect for taking care of you. People will try to help you and try not to discriminate you. People forgive you for whatever you can't do or did wrong.

Second class disability:
moderate mental retardation, no apparent physical disability
You still earn some sympathy. Your parents still earn some respect for taking care of you. People may try to help you but may tell you off when they are having a bad day when you did something wrong.

Third class disability:
No mental retardation, no physical disability, but you have Asperger syndrome (especially if you have high IQ)or ADHD.
You dont earn sympathy. Your parents get blamed for not teaching/educating you. You get nothing except for a world that doesn't quite accept you and your diagnosis.

Is life fair or unfair?
Well...it depends how you look at disability.

I was in the consultation session of a girl with Asperger + attention deficit disorder. She has an IQ of 120 and is on a private school scholarship. She cried in the consultation.
Mum said: The teachers only see the final results. They don't see how hard she struggles to get there.
(Mum cried, daughter cried and both hold hands)
The story was that she couldn't focus on planning and writing her schoolworks. For example, she spent a whole day to write an essay and she got really tired. She got excellent marks for her essay though. Mum was complaining to the teachers that she struggled to get the results but teachers don't see the problem.

Right...I don't see the problem also.
To me she doesnt have a disability lo.
I tried very very hard to sympathise...
Maybe this is because of our chinese upbringing or unfamiliarity with the diagnosis.

Demotivated

My runny+stuffy nose makes my breathing difficult.
My facial movements ie smiling, talking, eating make my mouth ulcer painful.
And DD is not really very stimulating.
Every person that I bumped into, asked me why did I choose DD...
I just couldnt lie and say "Oh, because I am interested..."
I would give a simple answer "It's not that I like, I just don't mind doing it..."
So ya...that is the extent of my enthusiasm.

I miss real clinical, ward-type of thing :[
And I will have to wait for 11 more weeks.

当科学碰上预言

曾经读过一本书，说人类越探讨科学，就会发现科学和宗教越来越接近...
好期待它们碰在一起的一天！

热忱，信仰，坚持

才在Developmental Disability几天，
我所看到的不多但感受到的，很多。

第一，这是一份需要很多热忱的工作。
我的supervisor已经年过古稀，
领着一群年轻的儿科医生，为这群特别的孩子服务。
头发已经全白，架着一副眼镜，
左手还不时地颤抖。

他宣布他已经决定要关闭他的私人诊所，
理由是他的私人助理兼太太觉得她已经负荷不来工作量，
是时候退出休息了。
而他依然决定留在医院里工作，说直到医院不要他为止。

他每天的工作，除了诊断这些孩子，
就是得准备一份又一份的报告，资料，
好让父母可以把这些资料带给学校作为沟通的管道。
可是很多时候，学校没有办法接受这些特别的孩子，
原因包括学校没有受过训练的教职员，没有办法教育他们。
有些孩子太顽皮，没办法控制脾气，总在学校捣乱，引起学校的不满。
他的工作就是去学校见一群教职员，跟他们解说孩子的病况，改变学校对孩子的期望指标，并希望达成共识。

我常想：这不是等于丢盐进大海？学校和社会真的有可能被你游说吗？尤其是自闭症的孩童，难道你解释说他们的顽皮和怪异是因为他们的脑子的问题，学校就会接受吗？
所以，除了热忱，第二：这份工作需要坚持和信仰。
还是有学校愿意配合，或许只是少数。
他相信，这些孩子只要能够留在主流学校，就能过将近常人的生活，
在特殊学校，他们就永远是被社会排斥的特殊孩子，因为在那里他们不会过像一般孩子那样的生活。
而我又想：真的吗？一般的孩童会愿意跟他们做朋友？或许我太悲观了，不尝试又怎么知道答案？

这个问题就像种族歧视吧，
无论我们假装我们不是其中的一分子，或是觉得根本不关我的事，
或是某部分的人多么努力地提倡反种族歧视，
多数的人心中还是觉得：肤色不一样，就是不一样，我没有歧视，但不代表我得无条件接受。

这是一条很漫长的路...
它不像一个骨折或一个细菌感染的伤口，时间或药物没有让它痊愈的能力。

我很感恩接触到了这一块领域。

又是新开始：Developmental Disability

Developmental Disability(DD)掀开了我final year的新的一页。

从忙碌的colorectal ward work 到只有outpatient的DD，是一个很大的转变。
这六个星期，我将会见到的病人包括了ADHD(注意力不足过动)，autism(自闭症)，intellectual disability (智障)，spina bifida(脊柱裂)，cerebral palsy (大脑性瘫痪)，Down syndrome （唐氏儿）等等...不幸的孩子。

今天我跟着我的registrar去上一个autism的课程，很不错，很充实，学了很多。